WHAT IS NF?

Neurofibromatosis (NF) is a rare genetic disorder that causes tumors to grow anywhere on or in the body and affects 1 in every 3,000 people. There are three distinct forms of NF: NF1, NF2, and Schwannomatosis. At this time, there is no approved cure for NF.

Neurofibromatosis 1 is characterized by multiple cafe-au-lait spots and neurofibromas on or under the skin. Occasionally, tumors may develop in the brain, on cranial nerves, or on the spinal cord. About 50% of people with NF1 also have learning disabilities.

Neurofibromatosis 2 is characterized by multiple tumors on the cranial and spinal nerves, and by other lesions of the brain and spinal cord. Hearing loss beginning in the teens or early twenties is generally the first symptom.

Schwannomatosis is a rare form of NF which is less well understood than NF1 and NF2 and has only recently been identified. The genetic disorder affects less than 1 in 40,000 people, and causes the development of benign tumors — called schwannomas — usually on spinal and peripheral nerves.

RAISE AWARENESS WITH OUR NF T-SHIRT!

Most people don’t know what Neurofibromatosis (NF) is, but Cupid’s Charity is trying to change that. NF is categorized as a rare disorder, but its frequency is actually more widespread than several, better known disorders. Actually, NF is more prevalent than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined. If you stopped a random person on the street, chances are they’d have heard of at least one of the above. They might even be able to tell you a little bit about these diseases. But would they have heard of Neurofibromatosis? Would they be able to tell you anything about it? Unfortunately, the chances are slim. (Now, if you pulled an undie runner off the street, that’d be a whole different story!)

Our loyal community of thrill•anthropists has raised almost $17 million for NF since 2010, and raising money for research continues to be our core motivation, but raising awareness is also central to our mission.

Since Cupid’s first started, over 89,000 undie runners have joined our ranks and 220,000 donations have been made to support our cause. That’s a lot of people learning about NF and spreading awareness to their networks. This month, you can help start a conversation about NF and spread awareness with our limited edition t-shirt and $15 will be donated directly to NF research with every t-shirt purchase!

OUR LIMITED EDITION MEN’S & WOMEN’S T-SHIRTS ARE AVAILABLE ONLY DURING NF AWARENESS MONTH. $15 WILL BE DONATED DIRECTLY TO NF RESEARCH WITH EVERY PURCHASE!

OUR IMPACT

We raise money for our partner the Children’s Tumor Foundation (CTF). CTF is the world’s largest non-governmental organization dedicated to ending NF through research. Currently, there is no cure for NF and there are frighteningly few treatment options, but we’ve raised over $16.9 million over the years and we’re getting closer to a cure to #EndNF!

SUBMIT YOUR NF CHAMPION

Cupid’s Charity is made up of families, friends, and passionate do-gooders who are deeply affected by neurofibromatosis deeply affected by neurofibromatosis – but even more deeply invested in fighting to find a cure. Our NF Champions are true fighters and we’re proud to fight alongside them. Their courage inspires all of us at Cupid’s Charity.

FUNDRAISE IN HONOR OR MEMORY

Through Project: Cupid, our DIY fundraising platform, we provide you with tools, a fundraising page, and support (if you want it) to accelerate research and help us #ENDNF. You can dedicate your Project: Cupid page to a loved one and collect donations benefiting Cupid’s Charity in their honor or in memory.

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