WHAT IS NF?
Neurofibromatosis (NF) is a rare genetic disorder that causes tumors to grow anywhere on or in the body and affects 1 in every 3,000 people. There are three distinct forms of NF: NF1, NF2, and Schwannomatosis. At this time, there is no approved cure for NF.
Neurofibromatosis 1 is characterized by multiple cafe-au-lait spots and neurofibromas on or under the skin. Occasionally, tumors may develop in the brain, on cranial nerves, or on the spinal cord. About 50% of people with NF1 also have learning disabilities.
Neurofibromatosis 2 is characterized by multiple tumors on the cranial and spinal nerves, and by other lesions of the brain and spinal cord. Hearing loss beginning in the teens or early twenties is generally the first symptom.
Schwannomatosis is a rare form of NF which is less well understood than NF1 and NF2 and has only recently been identified. The genetic disorder affects less than 1 in 40,000 people, and causes the development of benign tumors — called schwannomas — usually on spinal and peripheral nerves.
We raise money for our partner the Children’s Tumor Foundation (CTF). CTF is the world’s largest non-governmental organization dedicated to ending NF through research. Currently, there is no cure for NF and there are frighteningly few treatment options, but we’ve raised over $16.9 million over the years and we’re getting closer to a cure to #EndNF!
SUBMIT YOUR NF CHAMPION
Cupid’s Charity is made up of families, friends, and passionate do-gooders who are deeply affected by neurofibromatosis deeply affected by neurofibromatosis – but even more deeply invested in fighting to find a cure. Our NF Champions are true fighters and we’re proud to fight alongside them. Their courage inspires all of us at Cupid’s Charity.
FUNDRAISE IN HONOR OR MEMORY
Through Project: Cupid, our DIY fundraising platform, we provide you with tools, a fundraising page, and support (if you want it) to accelerate research and help us #ENDNF. You can dedicate your Project: Cupid page to a loved one and collect donations benefiting Cupid’s Charity in their honor or in memory.
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