WE ARE CUPID'S CHARITY.
Neurofibromatosis (NF) is a rare genetic disorder that causes tumors to grow on the nervous system and affects 1 in every 3000 people. Currently, there is no cure. Cupid’s Charity and its loyal community of supporters is on a mission to change that.
YOU'RE A PART OF THE CURE.
We fundraise because we believe there is a cure for NF. Whether we’re dropping pants in February for our
Cupid’s Undie Run or starting our own fundraising projects, our passionate community won’t stop until we #EndNF.
100% of our net proceeds go specifically to research. Here is how you can get involved.
WE ARE SERIOUS ABOUT SCIENCE.
Cupid’s Charity accelerates research. There are many other neurofibromatosis organizations out there, but we are
the only one that specifically and whole-heartedly focuses on funding research. And it’s working. Cupid’s Charity
works in alliance with our partner the Children’s Tumor Foundation to fund critical neurofibromatosis research.
Since our beginning, we’ve seen an increase in clinical trials and those who participate in the trials are seeing real results.
MEET OUR NF CHAMPIONS.
Cupid’s Charity is made up of families, patients, and friends who are deeply affected by neurofibromatosis – but even more deeply invested in fighting to find a cure. Our NF Champions are true fighters and we’re proud to fight alongside them.
“I knew my dad was deaf and I knew he was sick sometimes, but that’s all I really knew. So when I got sick at the age of 11 and diagnosed with NF2, I tried to not only process what the doctor had said, but also watch my dad’s face drop as I had to be the one to sign to him that his little girl suffered from the same disorder that left him deaf…”
“I was diagnosed with NF at a very young age. The hospital started becoming a second home to me. Countless trips for MRIs, CT scans, and blood tests became my norm. In high school, things started to get serious. I started having headaches and cranial pressure. Results from a CT scan showed I had hydrocephalus and multiple brain tumors…”
“I was 14 years old when I received my diagnosis. I had unknown growths/swelling on both feet and my thigh and we had seen several physicians trying to figure out what they were. Eventually I ended up at an orthopedist’s office and he looked at me and said, “Have you heard of the Elephant Man? You got that.”
When Maya was seven months old, she was diagnosed with neurofibromatosis type 1. Her parents lives were changed forever. Can you imagine learning that your “normal” is suddenly upside down? Reeling from the diagnosis and scrambling for answers, Maya’s parents researched and educated themselves about NF. They wanted to equip themselves with as much information about NF as possible…
10 Things You Need to Know About Cupid's Undie Run
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