CUPID’S CHARITY IS ON A MISSION TO FIND A CURE FOR NEUROFIBROMATOSIS
We fund research for Neurofibromatosis, or ‘NF,’ a genetic disorder that causes tumors to grow on the nervous system and affects 1 in every 3,000 people. Currently, there is no cure, but together with our loyal community of supporters, we’re on a mission to change that.
We work in alliance with our partner, the Children’s Tumor Foundation (CTF), a 4-star rated charity, and the world’s leader in NF research. Since our start in 2010, our dollars have helped CTF generate 115 preclinical studies which have led to 16 clinical trials. One of those trials resulted in more than 70% of people seeing their tumors shrink by 20 to 50%.
WE'VE RAISED $16,900,000 FOR NF RESEARCH
100% of our net proceeds benefits research, and every dollar brings us closer to a cure for NF. In its most recognizable form, NF appears as tumors all over the body. While NF is categorized as a rare disorder, it is actually more prevalent than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined.
NF can affect people of all ages, from new-babies to adults with children of their own,and along with the tumors comes discomfort, pain, surgery, doctor’s appointments, MRIs, potential paralysis, deafness and blindness.
WANT TO BRING CUPID'S UNDIE RUN TO YOUR CITY?
We’re always looking for people who are super-passionate about our cause.
If that’s you…we want to hear from you!
HOW TO GET INVOLVED
We fundraise because we believe there is a cure for NF. Whether we’re dropping pants in February for our Cupid’s Undie Run or starting our own fundraising projects, our passionate community won’t stop until we #EndNF. Here is how you can get involved.
MEET OUR NF CHAMPIONS
Cupid’s Charity is made up of families, patients, and friends who are deeply affected by neurofibromatosis – but even more deeply invested in fighting to find a cure. Our NF Champions are true fighters and we’re proud to fight alongside them.
“I knew my dad was deaf and I knew he was sick sometimes, but that’s all I really knew. So when I got sick at the age of 11 and diagnosed with NF2, I tried to not only process what the doctor had said, but also watch my dad’s face drop as I had to be the one to sign to him that his little girl suffered from the same disorder that left him deaf…”
“I was diagnosed with NF at a very young age. The hospital started becoming a second home to me. Countless trips for MRIs, CT scans, and blood tests became my norm. In high school, things started to get serious. I started having headaches and cranial pressure. Results from a CT scan showed I had hydrocephalus and multiple brain tumors…”
“I was 14 years old when I received my diagnosis. I had unknown growths/swelling on both feet and my thigh and we had seen several physicians trying to figure out what they were. Eventually I ended up at an orthopedist’s office and he looked at me and said, “Have you heard of the Elephant Man? You got that.”
When Maya was seven months old, she was diagnosed with neurofibromatosis type 1. Her parents lives were changed forever. Can you imagine learning that your “normal” is suddenly upside down? Reeling from the diagnosis and scrambling for answers, Maya’s parents researched and educated themselves about NF. They wanted to equip themselves with as much information about NF as possible…
10 Things You Need to Know About Cupid's Undie Run
Sign up for a monthly delivery of inspiration and the inside scoop on events.