We fund research for neurofibromatosis, or ‘NF,’ a genetic disorder that causes tumors to grow on nerves throughout the body and affects 1 in every 3,000 births. Currently, there is no cure, but together with our loyal community of supporters, we’re on a mission to change that.

We work in alliance with our partner, the Children’s Tumor Foundation (CTF), a 4-star rated charity, and the world’s leader in NF research. Since our start in 2010, our support has helped CTF generate 116 preclinical studies which have led to 16 clinical trials. One of those trials resulted in more than 70% of participants seeing their tumors shrink by 20 to 50%.

NF is categorized as a rare disorder; however, it is actually more prevalent than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined. NF affects all genders, ethnicities and ages equally from newborns to adults all across the globe. NF is not consistent. Its symptoms can be wildly different from person to person and include blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. 50% of all NF cases occur in families with no history of NF.