Julian was diagnosed with nf1 when he was 9 months old. We recently found put he has a plexiform neurofibroma on the left side of his face going from his eye down his nose and across to his jaw bone. In addition to one near his ear and one coming out the roof of his mouth. We are waiting for another scheduled MRI to see if the plexiform has grown larger and hope to get him on a clinical trial when he turns 2. Julian is always the happiest of babies and is a fighter!
Julian Guzman
Julian was diagnosed with nf1 when he was 9 months old. We recently found put he has a plexiform neurofibroma on the left side of his face going from his [...]