Roderick Mikael Fuentes

We always knew there was a possibility our son would have Neurofibromatosis Type 2, because I myself have it, but we hoped that would not be the case. After 21 hours in labor, Roderick finally arrived in July 2015. He came out a healthy baby boy with a few surprises including a head full of red hair, a tooth, and two Café au lait spots one on each leg. The Doctor told us not to worry, that they could just be regular birth marks. But at two months old we began to notice his right eye lid drooped. That’s when we started the process for genetic testing, and he was diagnosed at 5 months old with Neurofibromatosis Type 2. Even though we knew it was possible, it still hurt us when we got the call. We made the decision as parents that we would not get upset or break down that we would stay strong for him. He is now seeing an eye specialist every 6 months and is due for another appointment with a neurologist soon.