Johnny Beck

Our son Johnny was diagnosed with NF1 in November 2014 at 4yrs old. We noticed all these cafe au lait spots just randomly popping up all over his body and started to inquire about it. Never in our wildest nightmares did we ever think we would be delivered the diagnosis NF type 1. First, what the heck is NF and how come we have never heard of it?
Johnny is now a happy 5yr old boy who loves to play and is always smiling. We will fight NF with every thing we have!