Seth Luellen

I’m Seth, I have NF1. With this I have chronic pain, 2 tumors (one on my spine and one in my left elbow), and a small plexiform in my left eye. I also have 20 food allergies, several skin disorders, aortic heart valve disease, diabetes insipidus, SPD, autism, ADD, a tic syndrome, foot pronation with foot braces. I currently have therapy with an OT, PT, and Speech Therapist. Now the doctors are looking at possible MS, also CNS dysfunction, communications disorders. I’m on 93 medications, and at age 12, I just need a cure or treatment!