Mackenzie was diagnosed with NF1 when she was 8 when her little sister Emma was diagnosed. She is very healthy. She sees doctors yearly for prevention. She recently was told she can have her MRIs every two years instead of yearly. She has a NF brain, cafe au lait spots, freckling and two raised fibromas.
Mackenzie Christine Madar
Mackenzie was diagnosed with NF1 when she was 8 when her little sister Emma was diagnosed. She is very healthy. She sees doctors yearly for prevention. She recently was told [...]