Evan is a handsome,smart, funny, and determined little boy. He was diagnosed with NF when he was about a year and a half. Since then we have had 3 MRIs, many doctors and specialist visits, numerous evaluations and therapists. Our lives took a flip upside down. He is a new mutation so I had never heard of neurofibromatosis until the doctor said she thinks he has it, then The genetic test confirmed. Thank you for reading our story and for raising awareness for the monster NF. Right now there is NO cure, with your donations we are one step closer to finding one. Thank you
Evan McGowan
Evan is a handsome,smart, funny, and determined little boy. He was diagnosed with NF when he was about a year and a half. Since then we have had 3 MRIs, [...]