Colton had a rough time in utero, was born at 35 weeks and spent some time in the NICU. He was diagnosed shortly after we noticed a few faint cafe-au-lait marks and mentioned it to our pediatrician. She knew it was an indicator of Neurofibromatosis (NF) and that got the ball rolling. Colton has already had 2 surgeries, and years of early intervention services. He has numerous cutaneous tumors, as well as at least one larger plexi tumor that we know of.
Right now we feel pretty lucky, even considering what he has already been through, but we know that can change. We need your help to raise awareness and funding to hopefully find treatments and a cure! In the face of it all he is an incredible little boy who loves soccer, hockey, books, animals, being outdoors and having FUN!