Our son Colin was six when he was diagnosed with NF1. We knew there was something wrong when Colin was young as he had trouble communicating and ambulating. We then began to see many of the cafe spots on his skin and finally had him see a geneticist. Colin is one of the coolest kids you know. He really believes he is batman and if you run into him, he will probably be dressed in his full batman attire. Although he has some trouble running, he hits the heck out of the ball. He is our hero because we have dragged all around NC from doctor to doctor but he is always smiling and never complains. Despite being 7, he has already broken his foot, had stitches, has had numerous blood work and MRI’s. His nickname is “hugs” because he gives the best hugs. He never let’s you leave his room at night before giving you a big one. We love our little hero and we know his super powers are going to help us fight and find a cure.
Colin Cashell
Our son Colin was six when he was diagnosed with NF1. We knew there was something wrong when Colin was young as he had trouble communicating and ambulating. We then [...]