When my son Taylor was diagnosed with neurofibromatosis at UCSF I wanted to get up and walk out of the room. I wanted this not to happen to my baby. The room started feeling very small, and started to spin.When I started to cry the specialist told me I’d walked in there with the same little boy that was sitting on the table.
I will never forget her hand on mine… Taylor is the same little boy that you came in with. This is the same little boy.
He was, but he wasn’t. Every time I see a new tumor emerge on Taylor’s tiny body I know it will be there forever. The tumors won’t go away… and he will not get better.
Taylor is the most loving, kind, and sensitive kids anyone could meet. I love kissing his little face and telling him he’s the most handsome boy I’ve ever met. (He say’s I know mom).