Madison

Madison is an intelligent, funny, loving little girl who always has a smile on her face! She LOVES all Philadelphia sports but especially the Phillies and Chase Utley!!! Madison is 6 (7 on October 21st) and was diagnosed with NF1 at the age of 2. She has optic pathway gliomas, neuro plexiform growing on the back of her right eye and additional complications from NF1. We go to the Children’s Hospital of Philadelphia every 6 months for MRI’s, neuro-oncology, neuro-ophthalmology and ophthalmology appointments. Even with all the challenges, Madison LOVES life and is always smiling. As a parent, I wish I could do SOMETHING to help my daughter but there is no cure for NF. However, you can help by donating, assisting with runs or by spreading awareness to help find a cure!