Quentin was diagnosed with NF1 at 18 months and since then he has had 10 major surgeries and other procedures due to complications. Quentin and his family attempted one trial study that did not work and just started a new one this month. He is one of five children in Cincinnati and one of thirty in the country on this trial study. He has a plexiform neurofibroma on right side head and face that goes from his scalp to his skull and his cheek to his mandible bone. Facing all of this with a spirit and faith in God that most adults do not even have makes him even more special to us. His crooked little smile (left that way from the removal of his nerve since the tumor took it over) lights up a room. When you meet him you realize he is like every other kid and you forget about the scars and get sucked in by his contagious personality. We live in Columbus, but go to Cincinnati Children’s Hospital and their NF Clinic. We are so thankful for CTF and as a family are focused on raising funds in 2014 in hopes to moving one step closer to a cure
Quentin Laret
Quentin was diagnosed with NF1 at 18 months and since then he has had 10 major surgeries and other procedures due to complications. Quentin and his family attempted one trial [...]