About Molly
This is Molly, she was diagnosed with NF1 at 18 months. Doctors have found a brain tumor on Molly’s optic nerve, a significant pectus excavatum which causes her chest wall to grow inward pressing on her heart and lungs, scoliosis and Syringomyelia (a cyst, on the spine that can expand and elongate over time, destroying the spinal cord causing pain, paralysis, weakness, stiffness in the back, shoulders, and extremities.)
We are very grateful that none of these findings are having any major issues for Molly at this time but we know that can change in a heartbeat. We decided early on that we wanted to help raise funds for NF research through CTF.
We do a yearly fundraiser in Amesbury, MA. To find out more visit: mollybit.com