My daughter was diagnosed with NF 1 when she was 5 years old. JJ is now 14. She has had 2 brain tumors removed and they are watching the 3rd. JJ was also diagnosed with epilepsy, ADD, has LD’ s, thousands of CAL’s, femoral torsion and a shunt. She has been on chemo 3 different times. JJ gets migraines and stomach seizures. She’s only 4′ 9″ tall and weighs 64 lbs. Also she loves collecting pandas, coloring and playing with her friends. Taking horseback riding lessons and her cat Sammy. JJ is my NF hero.
J J
My daughter was diagnosed with NF 1 when she was 5 years old. JJ is now 14. She has had 2 brain tumors removed and they are watching the 3rd. [...]