Carter was diagnosed with NF 1 at 4 months of age even though, we knew from birth he had it due to multiple little Café au Latte markings. He had his first MRI at 7 months old and was told he had “optic nerve thickening”. A repeat MRI six months later showed significant change and the he then had bilateral optic gliomas (small tumor clusters growing along the optic nerves). We then started a long 18 1/2 month chemotherapy treatment in hopes to reduce the size of the tumors and save what vision he had left. He is currently blind in his left eye and has peripheral loss in his right eye.
Carter is one of the bravest and vivacious little boys I have ever come across in my life and I’m not saying that because he is my son. He is resilient, loves and lives life to its fullest everyday, what an amazing thing to witness at 4 years old. He also receives OT, PT, SLP and Vision Therapy weekly. Help us on our journey to raise awareness and to #endnf. THANK YOU!
Carter Pierce
Carter was diagnosed with NF 1 at 4 months of age even though, we knew from birth he had it due to multiple little Café au Latte markings. He had [...]