Collin turned 3 on May 7. In the summer of 2013, his family started noticing light brown spots on the back of his neck and under his arms. At his 15 month check up his mom made mention of the spots to the pediatrician. She checked and counted over and over how many there were and told the family to keep an eye on them. But that didn’t fly. Collin’s mom went home and searched the Internet for the possible cause of these spots. When she read about NF she just knew deep down they should pursue it.
They got the call in early December 2013 that Colin has NF1. They were heartbroken. Currently, they are lucky that the cafe au lait spots are the only signs right now of Collin’s NF. They hope beyond hope that these spots are all Collin will ever have to deal with. Since becoming part of the NF community Collin’s mom has seen and heard of some amazing people that have lost their battle to this monster. It is for them, and for Collin, that I fight to end NF.