Dylan is 11 and a half. He has Neurofibromatosis and lots of complex issues. He has lost half his hearing and can no longer see out of his right eye when the left one is open. He has a chest wall deformity and a feeding tube to help with nutrition. He has a hiatal hernia and multiple growths in his digestive system. He also suffers from migraines, has learning disabilities and a tumor in his right leg.
Although he has been through more in his little life than lots of grown ups endure in a lifetime, he remains one of the happiest and SWEETEST kids ever.
No matter how ridiculous, how silly, how CHILLY, we ARE running in the cold to help find a CURE for NF