Emma Madar

Emma was diagnosed with NF1 at 2 months old. She has cafe au lait spots, tumors on her spine, plexiform neurofibromas in her back, a cyst on her brain as [...]

Emma was diagnosed with NF1 at 2 months old. She has cafe au lait spots, tumors on her spine, plexiform neurofibromas in her back, a cyst on her brain as well as severe scoliosis. She sees 8 doctors a year. Has yearly MRIs and ultra sounds and eye exams. Even though Emma has all this going on she is always happy! A true fighter and hero in every sense of the word! #teamemma #endnf

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