Gage is 1 year old and has NF 1. So far he is doing great, but signs of his NF are a constant reminder that one never knows what a future facing neurofibrimatosis holds. Gages NF has lead to mosaicism of the skin and we have already discovered at least one plexiform neurofibroma in his chest. His dad and grandad also have NF1, they really are all truly heroes!
Gage
Gage is 1 year old and has NF 1. So far he is doing great, but signs of his NF are a constant reminder that one never knows what a [...]
