My daughter, Gianna, or Gigi as we call her, is the strongest little girl I know. At nine months old she was diagnosed with neurofibromatosis type 1. She was born with about ten café au lait spots, but it wasn’t until she developed her first fibroma, on her wrist, that I become concerned. Now, at four years old, NF1 brings many challenges to our life. Gigi has a growing number of café au lait spots, some bone deformation, three iris Lisch nodules in each eye, and over 80 fibromas. She has endured yearly MRIs and countless exams, specialist visits, and doctor appointments, all while remaining positive and brave.
Gianna loves being outside, animals, chocolate brownies, playing with her dolls and cars, and reading.
As her mother, I am committed to increasing NF advocacy and awareness. This year, our family participated in both the Orlando NF Walk and the Boca Raton NF Walk. We really enjoyed spending time with others in the NF community and raising money to help end neurofibromatosis