Hunter

My son Hunter was diagnosed with NF at age 2. Hunter is now 11 and is a bright, happy child with a beautiful smile! He never complains about the tests, doctor visits, poking and prodding. Because of NF, Hunter has dealt with a broken arm since age 4. It won’t heal properly because his bones are “affected by NF”- it’s like a tumor in his bones. He’s had surgery, 13 casts, 2 years in a full arm brace and still has limited range of motion in his right arm. Two years ago, a small tumor was spotted on his optic nerve in his brain. The scary truth is NF is so unpredictable & full of uncertainty, constant monitoring, doctor visits, MRI’s. Every NF story you read will be different b/c the effects of NF are so varied. It effects everyone differently. So you’re always worried, always monitoring, always hoping that when your child has a pain, it is not the start of something worse. There is no cure. Children’s Tumor Foundation is dedicated to funding research to find a cure!