My daughter was 8 months old when she us diagnosed with NF-1. I thought my whole world had turned upside down. My baby girl and has been put through 2 MRI’S already with more to come. Along with her NF she has the seizure disorder that comes along with it and the pseudoarthrosis in the long bones of her legs. My beautiful baby girl will be turning 1 on October 19th 2013. She has a long road ahead of her and I’ll stay by her side forever and ever. Please share and help find a cure for NF. My daughter is my NF Warrior Princess.
Izabella Adams
My daughter was 8 months old when she us diagnosed with NF-1. I thought my whole world had turned upside down. My baby girl and has been put through 2 [...]