Mariah Booker

Mariah is 10 years old and has NF1. Being diagnosed at 6 months old, she was covered in birth marks. At the age of 15 months we found a tumor in her cheek. She has been through a lot with her NF. She has high blood pressure due to an aneurysm inside her kidney. Mariah is in stage 2 kidney disease and is on 3 high blood pressure meds. She also has the tumor in her face and impacting her permanent teeth. She has had 2 surgeries this far and has a bunch of work coming up this summer. She also has learning disabilities, fine and large motor skill delays. She also has 2 brain tumors that are stable at this time. NF is very complicated, but we continue to fight and raise money for a cure.